コンノ　リエ   RIE KONNO   今野　理恵    所属   兵庫医科大学  看護学部 看護学科    職種   教授
言語種別	英語
発行・発表の年月	2022/07
形態種別	学術雑誌
査読	査読あり
標題	Experiences of families of people living with frontotemporal dementia: a qualitative systematic review.
執筆形態	共著
掲載誌名	Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society
掲載区分	国外
巻・号・頁	22(4),pp.530-543
総ページ数	14
著者・共著者	Shiba Tamami, Yamakawa Miyae, Endo Yoshimi, Konno Rie, Tanimukai Satoshi
概要	This review explores the experiences of families of people living with FTD. We searched four bibliographic databases for articles up to February 2021 to identify qualitative data on the experiences of families. Of 235 identified articles, we included six studies in the qualitative synthesis. Meta-ethnography was conducted to interpret families' experiences of people living with FTD. The emergent concepts were synthesised into five themes: Something is wrong with my loved one; No one fully understands; Existential pain of caring for a loved one with FTD; Increased burden owing to specific FTD symptoms; and Forced to adapt to new and unique ways of living with a loved one with FTD. This review highlighted families' confusion and suffering (which began in the early stages of the disease, and sometimes before diagnosis) and the difficulty of communicating with people with FTD.
DOI	10.1111/psyg.12837
ISSN	1479-8301
PMID	35429063